Considering Kidney Donation?
Kidney donation is major surgery involving:
- Medical tests that will require at least one full day at the hospital.
- One to three days in the hospital after surgery.
- Typically two to four weeks off work for recovery
For a review of kidney donation risks, click here.
Why Choose to Donate a Kidney Through the National Kidney Registry?
We’ve got your back
Two senior leaders in the NKR organization, including the CEO, are living kidney donors who donated their kidneys and started chains. As such, we intimately understand the living donor process and are committed to ensuring a convenient and safe donation experience for all living kidney donors.
The NKR provides ‘kidney prioritization’ to all NKR swap donors enabled by our Medical Board policy that states that, should an NKR donor’s remaining kidney ever fail, they will be prioritized in the NKR program to receive a living donor kidney. This is in addition to the prioritization points that a living donor receives on the national deceased donor wait list. Research shows that living donor kidney transplants last approximately twice as long as deceased donor kidneys. The NKR prioritization for a living donor kidney provides additional reassurance in the unlikely case that a donor will ever need a kidney transplant.
Any donor who registers through the DCN and donates through NKR will be automatically provided with basic donation disability insurance coverage purchased by NKR. The temporary total disability insurance includes a maximum $1,500 weekly benefit for 365 days subject to the donor’s last 12 months of earnings, with a 30-day waiting period.
Donors who donate through an NKR swap may be eligible for reimbursement of up to four weeks of lost wages, with reimbursement for weeks three and four requiring clearance from the transplant center. Reimbursement is limited to $1,500 per week. Lost wages are defined and limited to documented expected earnings that a donor lost due to time missed at work as a result of the kidney donation.
Donors who donate through an NKR swap are eligible for up to $2,000 in reimbursements of their travel and lodging expenses, for them and a travelling companion, related to their kidney donation based on submitted receipts. Add-on or luxury expenses are excluded. Driving expenses are reimbursed at the IRS medical mileage rate. Lodging reimbursement covers hotels in the proximity of the transplant center.
In the unlikely event that a kidney donor experiences post-surgical complications (e.g., hernia, etc.) related to kidney donation, the medical costs should be paid for by the recipient’s medical insurance. Sometimes insurance companies avoid paying these costs by limiting the time period that they will pay for donor complications, and sometimes they ask the donor for a co-payment for donor complications. While these instances are very rare, they do happen. Through the NKR’s Donor Protection Program, we ensure that any donor who participates in an NKR swap is never asked to pay for a post-surgical complication that is a result of their kidney donation. NKR Member Centers that opt into NKR’s Donor Protection Program agree to either cover all uncovered donor complications for NKR donors that undergo donor surgery at the center’s hospital, or the center is charged a fee that is added to the NKR Donor Protection Fund that is used to pay for NKR donor complications. If you have an uncovered complication related to your kidney donation in an NKR swap, please speak to the transplant program that performed your surgery so that we can ensure that you are not asked to pay for any costs related to the complication.
Most employers and insurance companies are supportive of living kidney donation. Some employers (e.g., the Federal Government, the National Kidney Registry, etc.) offer paid leave to employees that donate a kidney. However, we have seen situations where employers are not so supportive. In one situation, the NKR was instrumental in winning a wrongful termination case when a donor involved in an NKR living swap was fired for taking time off work to donate. We also understand that some donors, after they donate, lose their health insurance or see health insurance premium increases due to donating a kidney. These cases are very rare, but are wrong. If you donate your kidney as a part of an NKR swap and are wrongfully terminated, see a rise in insurance premiums, or lose your health insurance as a result of your donation, the NKR will stand behind you and our legal counsel will advocate on your behalf.
Have you ever noticed that organizations who routinely survey customer satisfaction generally provide better service? If you are referred to a transplant center from the NKR website you will be given an opportunity to provide direct feedback to the center via the “Five Star Survey.” The survey is sent to the donor via email upon completion of the following key steps in the donation process: workup, pre-op testing, three days after surgery and 30 days after surgery. The satisfaction survey is designed to take less than five minutes to complete and allows centers to continuously improve the donation process.
Paper-based donor screening and medical history data collection is inconvenient for donors. To make matters worse, many donor candidates are asked to fill out medical history forms multiple times during the intake process. The NKR has eliminated this problem by collecting screening and medical history data in an easy to use web-based format. Once the candidate completes the screening and medical history, the data is electronically transferred to the transplant center.
Other Reasons to Choose the National Kidney Registry
The Advanced Donation Program (ADP) is a kidney paired exchange separated in time. When a donor donates as part of the ADP, either a standard voucher or family voucher(s) will be provided based on the situation:
- When a donor donates for an intended recipient who will likely need a transplant within the next year, a standard voucher will be provided for that one recipient. Standard vouchers can also be provided when a chain breaks and a donor continues with their donation to keep a portion of their chain on schedule, even though their paired recipient has been removed from that chain.
- When a donor donates for intended recipient(s) who will not likely need a transplant within the next year, family vouchers will be provided for up to five intended recipients.
Both types of ADP vouchers allow donors to donate their kidney before an intended recipient receives, or even needs, a kidney transplant.
Donors donating either through the Advanced Donation Program or as Good Samaritan donors can specify the date range that they are able to donate. We generally need a minimum of four weeks from donor activation to swap commencement to organize a swap.
The typical kidney transplant chain facilitates four transplants, and each donor in that chain is an integral link to helping each patient get a compatible kidney. Each donor is a unique match for patients in the system, and being part of a chain makes not just one, but potentially many transplants possible.
The NKR has the largest pool of donors in the world. Our large pool is the key to finding a better donor-recipient match and is particularly helpful for highly sensitized patients. Highly sensitized patients are patients whose body has a strong immune response to the majority of donors, so the larger the pool, the more chance of finding a matching kidney.
The NKR has the largest pool of donors in the world, providing patients the best chance of finding a well-matched living donor kidney. A good donor-recipient match is correlated with a transplant that lasts longer. Patient outcomes from transplants facilitated by the NKR exceed the average U.S. living donor transplant outcomes at one, three and five years. We believe this is driven by the improved donor-recipient matches available through the NKR.
With a median wait time of around two months, we get the majority of our patients transplanted fast.
Ready to See if You’re Qualified to Donate a Kidney?
To get started:
- Complete the NKR Online Screening Survey, which takes approximately five minutes.
- If cleared, complete full medical history questionnaire, which you will receive the next day via email and which takes approximately one hour.
- Once you complete the medical history questionnaire, the transplant center will contact you within three days.
Then, (may vary slightly by center):
- Complete workups & labs. (1-2 days)
- Get cleared for donation. (1-4 weeks)
- NKR organizes swap.
- Schedule pre-op and surgery.
- Complete pre-op.
- Complete surgery.
- Periodic follow-ups.
When you’re ready to get started with the screening process, click here to see if you’re qualified to donate.